CLOVES Syndrome Awareness Day 2026: Building a Rare-Care Control Tower

• August 4, 2026,
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CLOVES Syndrome Awareness Day 2026 highlights the need for coordinated rare-care pathways. This executive brief focuses on multidisciplinary access, genomic expertise, procedural planning, longitudinal navigation, and family-centered support.

Scleroderma Awareness Month 2026: Build One Connected Specialty Pathway

• June 1, 2026,
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A 2026 executive brief for earlier scleroderma recognition, rheumatology access, organ-risk surveillance, multidisciplinary care, rehabilitation, and equitable support.

Ehlers-Danlos Syndromes Awareness Month – May 2025

• May 1, 2025,
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Hospital Leadership in Chronic Pain, Genetic Care, and Multidisciplinary Collaboration Published: May 1, 2025 Ehlers-Danlos Awareness Month 2025 brings attention to a group of underrecognized, often debilitating connective tissue disorders. Ea..