Myasthenia Gravis Awareness Month – June 2025

• June 15, 2025,
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Hospital Leadership and Rare Disease Strategy Published: June 16, 2025 Each June, Myasthenia Gravis Awareness Month brings visibility to a rare neuromuscular disease that requires urgent attention from healthcare leaders. Myasthenia Gravis (MG..

APOL1-Mediated Kidney Disease (AMKD) Awareness Day – April 30, 2025

• April 29, 2025,
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AMKD and Health Equity: Executive Strategies for Rare Disease Recognition Published: April 30, 2025 APOL1-Mediated Kidney Disease (AMKD) Awareness Day brings to light a rare and often misunderstood condition that disproportionately affects peo..

Rare Disease Day 2025: How Hospital Leaders Can Advance Equity and Innovation

• February 27, 2025,
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Healthcare Executives Must Champion Inclusion, Research, and Access for the 1 in 10 Americans Living with a Rare Disease Published: February 28, 2025 Rare Disease Day, observed annually on the last day of February, brings attention to the more..